Visited Respiratory Dept today at Manukau Super clinic for results of bronchoscopy and biopsy performed on 1st April.
Good news indeed.
There are no significant health issues and I will be recommended for addition to the transplant list.
However I still have to be selected by the transplant medical team when they next meet, hopefully within the next four weeks.
If selected for the list I may have to wait up to 4 years for a transplant.
Tuesday, April 27, 2010
Sunday, April 18, 2010
Transplant list
On 27th April I have to attend Manukau Super Clinic, Respiratory Department for the results of my recent brochoscopy.
I anticipate one of the following three outcomes:
1. The Respiratory Dept will support my application for being added to the transplant list.
2. The Respiratory Dept will not support my application because I have some "bugs" in my lungs which will become dangerous after a transplant and on immune suppressive drugs.
3. The Respiratory Dept will not support my application until I have been treated for the elimination of "bugs" in my lungs.
My best hope is for the outcome to be 1.
I anticipate one of the following three outcomes:
1. The Respiratory Dept will support my application for being added to the transplant list.
2. The Respiratory Dept will not support my application because I have some "bugs" in my lungs which will become dangerous after a transplant and on immune suppressive drugs.
3. The Respiratory Dept will not support my application until I have been treated for the elimination of "bugs" in my lungs.
My best hope is for the outcome to be 1.
Friday, April 16, 2010
Disaster Planning - Dialysis Patients
For general information on disaster preparation the best internet source is http://www.getthru.govt.nz/web/GetThru.nsf/web/BOWN-7GY2MF?opendocument
In New Zealand, the risks posed by earthquake, tsunami,and vocanic activity are a fact of life.
The following practical information is primarily aimed at dialysis patients and suggests how to look after yourself, your family, and your home in the event of a NZ disaster
.
Be prepared to cope on your own for up to three to five days.
Everyone will be affected by a disaster, including the rescuers that we rely on.
Immediately after an event, emergency services and civil defence staff will have to respond to the most critical demands.
This means they may not get to everyone who needs help as quickly as needed.
It could be several days before services are restored. Even then, access may be limited.
Damaged infrastructure, such as roads, bridges, rail lines, water and electricity supplies will take longer to restore.
Mobile phone systems may be inoperable due to damage or overload.
For patients on Home Hemodialysis or Peritoneal dialysis
Make sure that you always have five days supply of dialysis stock always in hand in case you are isolated by a disaster.
For those who live on their own try and have a “Buddy” such as a near neighbour, or relative who can support you during a disaster.
If on hemodialysis review your emergency disconnection procedure detailed in our troubleshooting manual in case a disaster occurrs whilst you are dialysing.
You should be able to disconnect yourself within two minutes.
Make sure your hemodialysis machine wheel brakes are firmly locked on.
In the case of an earthquake you would not want your machine to wheel away from you across the room whilst you are still connected.
Advise your electricity supplier in writing that you are dependant on life supporting electrical equipment.
If water and electrical supplies are interupted you will not be able to dialyise on your machine.
If you cannot dialise and are isolated from external help cut your food and water intake to the absolute minimum you can tolerate to avoid fluid or toxin overload.
If on periteal dialysis try and store at least five days supply of fluid bags in a secure place (maybe under stairs) where they will not be damaged by falling debris.
Before a disaster
You will need to have:
Household Emergency Checklist This list will help you prepare essential food, water, clothing and medical supplies to cope for at least three days
Emergency items.
keep the following items together in a cardboard carton
• Torch with spare batteries or hand operated LED torch which are available in many $2 stores.
• Portable radio with spare batteries (check all batteries every 3 months)
• A change of clothing (wind and waterproof clothing, sun hats, and strong outdoor shoes)
• First aid kit and essential medicines
• Blankets or sleeping bags
• Pet supplies if relevant.
• Toilet paper and large rubbish bags for your emergency toilet
• Face and dust masks
Food and water for at least three days
• Non-perishable food (canned or dried food)
• Can opener
• Bottled water (at least 2 litres per person, per day for drinking).
• Plan how to get water for washing and cooking (check your hot water cylinder, pond, toilet cistern, swimming pool if it is free of chemicals).You can use household bleach as an disinfectant. Add 1 drop (0.05 mL) of bleach to 1 Litre of water.
Plan now to maximise your survival chances if an emergency occurrs.
In New Zealand, the risks posed by earthquake, tsunami,and vocanic activity are a fact of life.
The following practical information is primarily aimed at dialysis patients and suggests how to look after yourself, your family, and your home in the event of a NZ disaster
.
Be prepared to cope on your own for up to three to five days.
Everyone will be affected by a disaster, including the rescuers that we rely on.
Immediately after an event, emergency services and civil defence staff will have to respond to the most critical demands.
This means they may not get to everyone who needs help as quickly as needed.
It could be several days before services are restored. Even then, access may be limited.
Damaged infrastructure, such as roads, bridges, rail lines, water and electricity supplies will take longer to restore.
Mobile phone systems may be inoperable due to damage or overload.
For patients on Home Hemodialysis or Peritoneal dialysis
Make sure that you always have five days supply of dialysis stock always in hand in case you are isolated by a disaster.
For those who live on their own try and have a “Buddy” such as a near neighbour, or relative who can support you during a disaster.
If on hemodialysis review your emergency disconnection procedure detailed in our troubleshooting manual in case a disaster occurrs whilst you are dialysing.
You should be able to disconnect yourself within two minutes.
Make sure your hemodialysis machine wheel brakes are firmly locked on.
In the case of an earthquake you would not want your machine to wheel away from you across the room whilst you are still connected.
Advise your electricity supplier in writing that you are dependant on life supporting electrical equipment.
If water and electrical supplies are interupted you will not be able to dialyise on your machine.
If you cannot dialise and are isolated from external help cut your food and water intake to the absolute minimum you can tolerate to avoid fluid or toxin overload.
If on periteal dialysis try and store at least five days supply of fluid bags in a secure place (maybe under stairs) where they will not be damaged by falling debris.
Before a disaster
You will need to have:
Household Emergency Checklist This list will help you prepare essential food, water, clothing and medical supplies to cope for at least three days
Emergency items.
keep the following items together in a cardboard carton
• Torch with spare batteries or hand operated LED torch which are available in many $2 stores.
• Portable radio with spare batteries (check all batteries every 3 months)
• A change of clothing (wind and waterproof clothing, sun hats, and strong outdoor shoes)
• First aid kit and essential medicines
• Blankets or sleeping bags
• Pet supplies if relevant.
• Toilet paper and large rubbish bags for your emergency toilet
• Face and dust masks
Food and water for at least three days
• Non-perishable food (canned or dried food)
• Can opener
• Bottled water (at least 2 litres per person, per day for drinking).
• Plan how to get water for washing and cooking (check your hot water cylinder, pond, toilet cistern, swimming pool if it is free of chemicals).You can use household bleach as an disinfectant. Add 1 drop (0.05 mL) of bleach to 1 Litre of water.
Plan now to maximise your survival chances if an emergency occurrs.
Thursday, April 15, 2010
Donor Kidney
I recently wrote on my Facebook page that I am in need of a donor kidney
Following replies receved.
Victor Blass: I know quite a number of people abroad now who wish to donate a kidney. They do wish some compenation, but not extremely expensive. Most want around 50K.
Betsy Bond NOTICE: All of you needing a kidney, have you tried this site?: www.matchingdonors.com. They have donors already in position and waiting for you to find them. A small mebership fee is charged BUT they can do payment plans and it is very reasonable! At leeast just check it out and/or talk to the founders, Paul or W...alley at 781-821-2204. Good Luck to you all. Betsy BondSee more
Organ Donor, Organ Transplant, Organ Donor Services,
Matching Donors
www.matchingdonors.com
Organ Donor Matching Services provided by Matching Donors, connects Organ Donors with Donor Matches worldwide
I may be wrong but I think it is illegal in NZ to pay anyone for their kidney.
Can anyone confirm this ?
Following replies receved.
Victor Blass: I know quite a number of people abroad now who wish to donate a kidney. They do wish some compenation, but not extremely expensive. Most want around 50K.
Betsy Bond NOTICE: All of you needing a kidney, have you tried this site?: www.matchingdonors.com. They have donors already in position and waiting for you to find them. A small mebership fee is charged BUT they can do payment plans and it is very reasonable! At leeast just check it out and/or talk to the founders, Paul or W...alley at 781-821-2204. Good Luck to you all. Betsy BondSee more
Organ Donor, Organ Transplant, Organ Donor Services,
Matching Donors
www.matchingdonors.com
Organ Donor Matching Services provided by Matching Donors, connects Organ Donors with Donor Matches worldwide
I may be wrong but I think it is illegal in NZ to pay anyone for their kidney.
Can anyone confirm this ?
Wednesday, April 14, 2010
Tuesday, April 13, 2010
Kidney Transplant acceptance procedure
I have been working through the following medical checks since March 2008.
Echocardiogram, PSA(Prostate),Full Blood Tests, Treadmill test, Chest XRay ,
Hepatitis Inoculation, Consultation with Transplant Administrator, Consultation with Renal Medicine, Consultation with Transplant Surgeon, Consultation with Renal Medicine Team, Consultation with Respiratory Medicine Team, Lung CT Scan, Bronchoscopy,
Flu Vac/Pneumovax Vac.
I am currently awaiting the results of the Bronchoscopy on 27th April.
There is no guarantee that I will be added to the transplant list.
Even if I am added there is currently a 4 year waiting time for a transplant with over 400 patients on the waiting list.
Last year there were around 100 transplant operations performed.
Visit
Visi
Echocardiogram, PSA(Prostate),Full Blood Tests, Treadmill test, Chest XRay ,
Hepatitis Inoculation, Consultation with Transplant Administrator, Consultation with Renal Medicine, Consultation with Transplant Surgeon, Consultation with Renal Medicine Team, Consultation with Respiratory Medicine Team, Lung CT Scan, Bronchoscopy,
Flu Vac/Pneumovax Vac.
I am currently awaiting the results of the Bronchoscopy on 27th April.
There is no guarantee that I will be added to the transplant list.
Even if I am added there is currently a 4 year waiting time for a transplant with over 400 patients on the waiting list.
Last year there were around 100 transplant operations performed.
Visit
Visi
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